Being Heumann: An Unrepentant Memoir of a Disability Rights Activist by Kristen Joiner, Judith Heumann

Kristen Joiner’s memoir, “Being Heumann: An Unrepentant Memoir of a Disability Rights Activist”, tells the story of a life characterized by tireless activism towards leveling the playing field for people with disabilities. Through it, Joiner reveals how she and other disability rights activists have worked tirelessly to create a fairer playing field for those with disabilities, allowing them greater access to resources, accommodations, and respect. This book is an autobiography, making clear why Joiner has devoted her life to advocating for a better life for people with disabilities.

In the book, Joiner shares her intentions for writing her memoir: to “tell the stories of people living with disabilities who, like her, are using their skills, contacts, and backgrounds to help create a fairer world”. It is a memoir focused on the stories of activists who work to create a society in which everyone can thrive, regardless of disabilities. Joiner shares her experiences of facing discrimination and her journey in going from a bullied child to a disability rights advocate. The book follows Joiner’s life journey through hardship, triumph, and recognition as she works to make a difference in the lives of people with disabilities.

Throughout the book, Joiner relays to the reader the nuances and complexities of disability rights advocacy. In recounting her advocacy, Joiner shares her understanding of both the political and personal dynamics associated with disability rights. Joiner is particularly knowledgeable in learning disability rights; she is an activist for accessible classroom instruction. As part of her commitment to disability rights, Joiner helped establish the American Speech-Language-Hearing Association and the Title IV Endrew F. case, ensuring that schools must provide a “free and appropriate education” for all children regardless of disability. Joiner’s memoir also covers her work towards enacting civil rights legislation in order to secure and enforce work disabilities, address ableism in hiring practices, and installing curb ramps and other public infrastructure.

Joiner’s memoir is one of resilience, courage, and strength in pushing for an equal playing field for all. By sharing her story, Joiner offers a candid look at how she lives with disability and how to use her knowledge and experiences to make a difference in the lives of people with disabilities. Joiner’s message is one of perseverance and hope. Even in the most difficult moments, she finds joy and optimism that change is possible. She recounts the adversity and discrimination she faces as an amputee, yet remains steadfast in her commitment to justice and social rights for disabled people.

“Being Heumann” models for disabled people and encourages those in abled bodies, alike, to look beyond basic rights and strive for the full humanity of disabled people. Through it, Joiner shows the reader how disabilities can become fuel for advocacy and activism. The book is a testament to its author’s strength, work ethic, and commitment to disability rights. Joiner’s memoir may offer inspiration for readers of all backgrounds, as she demonstrates the importance of justice, self-determination, and service — elements of which may be found in activism of any kind.